Continuation from May 18th post:
1. Consulted with Dr. Renneker last week
2. Saw Dr. Cowan today
3. More blood work tomorrow to check out liver and other cancer'ish things
4. Also tomorrow: Ultrasounds of my left "axillary" (armpit on the side where there was cancer, to see if any more lymph nodes are lighting up) and of my abdomen, to see if there are any large tumors that have suddenly developed (highly unlikely) in my liver or anywhere else in that vicinity. These are simple tests, no radiation.
5. Wait for results. Decide if I think it is or is not worthwhile to do a diagnostic CT scan in order to search for tiny cancer that the ultrasound couldn't possibly have found. But if you already know that you need to ramp up your protocol, no matter what (that is, no matter if something suspicious shows up ...or not...), then why risk having that Hiroshima'ish amount of radiation that can CAUSE more cancer or promote any cancer that might already be there?
6. Whatever the results are, I'll be ramping up my "protocol" to try and figure out what will make the tumor markers go down. Nobody knows what will work. There are various options in both the alternative and conventional fields. Typically, no matter what your protocol is, you do it for a short period of time (ie. six weeks), then have the tumor marker tests done again. If they are going down, you stick with that protocol. If they are not going down or are going up, you stop that protocol and switch to something else. You keep testing and switching until you either get better or you die. That last part is the simple part.
7. One thing Cowan thinks I should do is intravenous high dose Vitamin C, which would entail three three-hour infusions per week for six weeks. Not covered by insurance, of course. And might require traveling to Mill Valley. So let's say four hours per time. Twelve hours a week. Six weeks.
7. That is but one option out of many. I don't know if Renneker will agree that it's a good one to start with. I don't even know if it's the one I think would be the best to do first.
8. But it's 9:45 p.m. and I am tired of thinking about it. And I have to get up early to go to UCSF on Parnassus. Must be there by 8 a.m. Must not eat or drink anything for at least six hours prior. I wrote a big note to myself already and put it on the kitchen counter next to the coffeemaker: "Do not eat or drink!"
9. Another day has gone by when I should have been working at my JOB but only was able to put in about one quarter of the time I should have. It's frustrating. I need to earn money to pay for whatever protocol is around the corner. Ka-ching ka-ching ka-ching.
10. I am not depressed or panicked, and I am not jumping up and down for joy, either. That whole "one step at a time" thing is a good idea. My next step is to stop blogging and work on a photo for 15 or 20 minutes. That's one of my favorite methods for getting out of worry/fear mode and into "be here now" mode.
That's all folks. Not a beautifully worded post. Just the bare bones.