I'd rather spend the next three hours writing than calling doctors to make appointments. But the woman at the financial office at St. Francis wants me to get my primary care doctor to fax her a copy of a "referral letter" proving that she did indeed refer me to the geneticist/researcher/HRT specialist who is going to consult with me - the first of several consultations I must arrange for, as follows, with:
1) The Oncologist
2) The second opinion oncologist
3) The radiologist, Part 1 preliminary consultation
4) The radiologist, Part 2 preliminary consultation
5) The Geneticist/researcher/HRT specialist, Part 2
6) The pathologist/cancer researcher
7) The menopause specialist
All appointments must be coordinated and put in the right order. All information culled from the appointments must then be analyzed and organized (by me, the layperson). The only way I can analyze the information is to ask the various specialists what they think I should do, after telling them what the other specialists think I should do. When they give me different opinions, which will happen (and has ALREADY happened) I will ultimately have to make my own choice even if I'm not sure which choice to make, because of course I am not a surgeon, pathologist, oncologist, geneticist, radiologist or menopause specialist.
But I digress. Back to the referral letter. After I get that sent over to the St. Francis financial office woman, she will then call HealthNet, my insurance company, again today, to see if she can get through to them this time around. Yesterday they put her on hold for 15 minutes, and she finally gave up.
So I will not be writing for the next three or four hours, as I'd like to do. But I will write for the next 20 to 30 minutes, long enough to say:
For the last two nights running, I've been waking up between 3 a.m. and 5 a.m., and not being able to go back to sleep because my mind is racing with: medical facts, medical questions, gigantic to-do lists, and fears. Currently uppermost in my mind is the question: How will I ever be able to continue running the Writing Salon if I have to undergo both radiation and chemotherapy? I hear that these treatments typically take approximately six months to complete. Six months of living a hellish existence filled with profound fatigue, nausea, all kinds of lovely bowel problems, hair loss, lack of appetite, susceptibility to throat and nose infections, etc. Even if I didn't have a business to run, getting through this "experience" sounds pretty damn difficult. And even if it were only three months rather than six, that would be long enough for the Writing Salon to fall apart. Why don't I just hire help? Short question, long answer. Suffice it to say that this would be a complicated endeavor, at best. It takes time and energy to train someone to do what I have been doing myself for seven years. I'm not saying I won't try. I'm just saying I'm overwhelmed by the thought of trying to do this, at breakneck speed, on top of everything else.
The only way to deal with any of this is to keep going back, over and over, to the mantra: One step at a time.
This morning I wondered how many other women are writing in blogs about their breast cancer experiences. So I did a Technorati search and, of course, found several. I looked at two or three that were sincere but not particularly well written and therefore not compelling. The fourth one, however, I thought was well written and made several good points. Yes, it has an angry edge to it, but that's okay. Anger is allowed, don't you think? It's born of exhaustion and frustration. We can't stay rational and reasonable and calm every second, no matter how hard we try.
After reading that blog, I forced myself to stop looking for other breast cancer blogs, much as I would have liked to find the comfort of hearing how other women are coping with the challenge, because I must get a million things done today.
The first thing I did was pick up a book that came to me in the mail two days ago, from a book publicist at Harcourt. It's called Pen on Fire: A Busy Woman's Guide to Igniting the Writer Within, and was written by Barbara DeMarco-Barrett, who teaches creative writing at the University of California, Irvine, and also hosts the radio show Writers on Writing.
I scanned the table of contents and my eyes went straight to the chapter titled: Expose Yourself. Brief excerpt:
The authors I most admire put it all out there for readers to do with what they will. These authors know there is power in the darkness they've lived through or have seen through the eyes of others and they're willing to harness that power and stream it into words....
...You can't undo what's been done to you, but you can make some sense of it through writing. Use those experiences and create art....
...Those dark parts hold power over us. They give us bad dreams at night and they influence our behavior with people in the light of day. When you write about those parts, you help to transfer that invisible but oh-so-tangible power they have over you onto the printed page.
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